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How a Neurological Disorder Changed my Life for the Better

Patrick Bohan

The Science behind Nerve, Muscular, and Neuromuscular Disorders and their Effects on Cycling

I achieved athletic success with a debilitating neurological condition for three reasons. First, training techniques can alter muscle protein composition overcoming physical limitations. Second, training can bypass diseased cells by creating alternate neural pathways for the brain and muscles to communicate. Finally, improving personality traits such as resiliency, grit, and mental toughness can help overcome physical limitations such as pain.

  Sports & Outdoors   125,000 words   50% complete   5 publishers interested
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323 preorders
$6,460.00 funded

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Update #5 - Manuscript Sent to Publisher Oct. 31, 2020

On Oct. 14, I sent a complete copy of my manuscript to Inside Edge Publishing. I can only anticipate that it will take a lengthy period of time for them to work through the manuscript. Right now keeping people updated has gotten a bit more difficult. On the same day that I submitted the manuscript, I was in a bad bike accident.

I have 19 broken bones and had 3 surgeries. That said, that was the easy part of my 25 day hospital stay. Unfortunately, I got a serious gastro infection and I really thought I was going to die. My colon was swollen 6 times larger than normal and they seriously considered removing it. Fortunately, they let me fight to keep it and I seem to be on the mend. I am home, but there is a high probability the infection can reappear. Right now I feel blessed to be alive. 

I am not sure what caused the accident since I was out cold. I was in a time trial race at Cherry Creek state Park. Something caused me to jam on the brakes in a straight section on the course. Roads are open to traffic. I sailed over the handle bars and did a face and shoulder plant on the pavement. I was probably going about 28 or 29 mph. I had reconstructive surgery on both my face and shoulder. I also have 10 broken ribs and two broken vertebrae. My helmet probably saved my life. 

Many blammed the accident on the high winds that day. That is false, my injuries are not consistent with any crosswind issues. I had no injuries to my lower body, not even any road rash. 

My road back is going to be long and hard. I have already experienced massive wasting of muscle mass. I look nothing like I did four weeks before the accident. I am walking several miles a day and the past two days even got on my bike on the trainer. I am not supposed to be riding yet, but I got to try to reverse the massive atrophy. 

I will do my best to keep everyone updated on the progress of the book as I go through my rehab. 

Also, my neurologist sent me to a get a second opinion since I really do not fit any one disorder. The new neurologist is not convinced my diagnosis of MMN and CFS is correct. He has me being tested for all types of genetic disorders. The first 109 genetic tests came back negative and I am going to have another panel done that checks for mutations in 72 other genes. So, it is like I have made no progress after 13 years of testing. It is frustrating. The only thing the neurologist agree on is that there is something wrong, but they cannot agree what that may be. 

Again, thank you to all for your support on this project. I could not have done it without your support. Hopefully, I can bring some awareness to neurological disease.